Speaking Engagements

2009

  • Speaker, “Evaluating the Needs of Women Living with Metastatic Breast Cancer: A Global Survey,” 2nd Annual Africa Breast Cancer Conference, Cairo, Egypt, March, 2009.
  • Speaker, “Facing CNS Mets: Three Reports from the Front,” in workshop, “Invading the Sanctuary: New Approaches to Brain Metastasis,” American Association for Cancer Research, April, 2009.
  • Speaker, Workshop: “Advocacy in the Center of Excellence,” National Breast Cancer Coalition, April 2009.
  • Speaker, Workshop: “A Patient Perspective on Risk and Benefit,” Society for Clinical Trials Annual Meeting, May, 2009.
  • Speaker, “After Breast Cancer: Answers to the Questions You’re Afraid to Ask,” CRAAB, Capitol Region Action Against Breast Cancer, May 2009.
  • Speaker, “After Breast Cancer: Answers to the Questions You’re Afraid to Ask,” Benedictine Hospital, Kingston and St. Luke’s, Cornwall, NY September 2009.
  • Speaker, Director’s Consumer Liaison Group, National Cancer Institute, with Dr. Pat Steeg, on advocacy collaboration, September 2009
  • Speaker, “The Challenge of Cancer Clinical Trials: A Patient Perspective,” Clinical Trials Workshop, Institute of Medicine Forum on Drug Discovery, Development and Translation, October, 2009.

 2008

  • Keynote Speaker, Stepping Beyond Breast Cancer Conference on Survivorship Issues, Virginia Breast Cancer Foundation, September, 2008.
  • Speaker, First Africa Breast Cancer Conference, Abuja, Nigeria, March, 2008
  • Speaker, “Silent Voices: A Survey of Women with Metastatic Breast Cancer,”  8th Annual New Strategies in Breast Cancer Conference, Philadelphia, April, 2008
  • Speaker, “Emerging Issues in Breast Cancer Research,” and “A Conversation about Metastatic Breast Cancer,” Breast Cancer Options Annual Conference, New Paltz, New York, April, 2008
  • Speaker, “After Breast Cancer: Answers to the Questions You’re Afraid to Ask,” “Emerging Issues in Breast Cancer Research,” and “Silent Voices,” Providence Hospital and Alaska Breast Cancer Advocacy Partners, Anchorage, Alaska, June, 2008.
  • Panelist, Accelerating Anti-Cancer Agents Workshop (NCI, FDA, Duke, AACR), Bethesda, Maryland, June, 2008
  • Plenary Speaker, “Managing Breast Cancer Across the Spectrum of Disease,” Era of Hope Conference, Department of Defense Breast Cancer Research Program, Philadelphia, PA, June, 2008
  • Poster Presentation, “Evaluation of BrainMetsBC.org, a New Resource for Breast Cancer Patients with Brain Metastases,” Era of Hope Conference, Department of Defense Breast Cancer Research Program, Philadelphia, PA, June, 2008.
  • Presentation, “Point/Counterpoint: Advocates Discuss Endpoints in Breast Cancer Registration Trials,” FDA Training for Patient Representatives and Consultants, Rockville, MD, July, 2008.

2007

  • Presentation of “Silent Voices: Women with metastatic breast cancer share their needs and preferences for information, support and practical resources,” survey results at the American Psychosocial Oncology Symposium (APOS), March, 2007.
  • Presentation of Silent Voices survey results to staff, volunteers and clients of SHARE: Self-Help for Women with Breast and Ovarian Cancer, April 2007.
  • Plenary Speaker, “Evidence-Based Health Care: What Would it Mean for Patients?” National Breast Cancer Coalition Annual Conference, April 2007
  • Presentation, “What do we really need to know? An advocate reflects on early access, safety, and the search for best evidence,” Cancer Prevention and Control Colloquia Series, National Cancer Institute, June 2007. Interview, “The Quiet War: Living With Advanced Breast Cancer,” Affinity Films, CD-ROM, released June 2007.
  • Plenary Speaker, “New Directions in Breast Cancer Treatment,” California Breast Cancer Research Program (CBCRP) Symposium, Los Angeles, CA September 7-8, 2007
  • Presenter, Discussion for Women with Metastatic Breast Cancer, for Breast Cancer Options, Benedictine Hospital, Kingston, New York,  July 2007.

2006

  • Keynote Speaker, “Issues After Breast Cancer,” and “Metastatic Breast Cancer: Tools for the Journey.”  Susan G. Komen Conference, Portland, Oregon, March, 2006.
  • Plenary Speaker, “Breast Cancer in the 21st Century: Hope or Hype?” National Breast Cancer Coalition Annual Advocacy Training Conference, April 2006.
  • Plenary Speaker, “Potential New Frameworks and Approaches to Better Assess and Communicate Benefit/Risk,”  PhRMA Town Hall Meeting, Washington, DC, May 2006.
  • Panel Speaker, “Barriers to Clinical Trials Enrollment: the Patient Perspective,”  World Cancer Congress, Washington, DC. July 2006.
  • Speaker, “Advanced Breast Cancer: Tools for the Journey,” Y-ME Share-Ring Network Teleconference, September 2006.
  • Presenter, Workshop: “Understanding Evidence-Based Healthcare: A Foundation for Action,” Cochrane Colloquium, October 2006.
  • Discussion Leader, event to launch The Wellness Community Patient-Active Guide: Advanced Breast Cancer, October 2006.

2005

  • Speaker, “Clinical Trials 101,” presentation to SHARE and JALBCA (Judges and Lawyers Breast Cancer Alert), March, 2005.
  • Fresh Air, Interview with Terry Gross, WHYY, broadcast on NPR affiliates. April, 2005.
  • Speaker, “Treating the Whole Woman,” One and a half hour panel discussion at the annual conference of the American Society for Breast Disease, Las Vegas, with Debu Tripathy and Gwen Darien.
  • Speaker, FDA Advisory Committee New Member Training, April 2005.
  • Speaker, “Ethical and Clinical Dilemmas Resulting from the Early Closure of Recent Clinical Trials in Breast Cancer.”  Educational Session, American Society of Clinical Oncology (ASCO) annual meeting, Orlando, presented on May 13, 14, 2005.
  • Plenary Speaker, “Breast Cancer Research: Your Tax Dollars—Who Benefits?” National Breast Cancer Coalition Annual Advocacy Training Conference, May 2005.
  • Speaker, “Post-Marketing Surveillance,” NBCC Annual Conference, workshop with Susan Sacks, Roche, and Vicki Goodman, FDA, May 2005.
  • Speaker, “Gene Panels: Promises, Progress and Limitations,” with Joanne Zujewski, NBCC Annual Conference, May 2005.
  • Plenary Speaker, “Forum on Making/Influencing Public Policy,” Society for Clinical Trials annual meeting, Portland, Oregon, May 2005.
  • Speaker, “Genomics, Proteomics and Clinical Trials,” Society for Clinical Trials annual meeting, Portland, Oregon, May 2005.
  • Speaker, “Best Practices for Patient Advocates” Clinical Trials Summit, September 2005.
  • Speaker, “Enhancing Drug Safety in the 21st Century,” American Academy of Pharmaceutical Physicians Annual Meeting, Philadelphia, November 2005.

2004 

  • Industry Roundtable Respondent, Early Access to Investigational Treatments, National Coalition for Cancer Survivorship, March 2004
  • Presentation and Discussion, “Living with Metastatic Breast Cancer,” with David Mintzer, MD at the Wellness Community, Philadelphia, March 2004
  • Keynote Speaker, “Advanced Breast Cancer: Tools for the Journey,” Rochester Breast Cancer Coalition, March 2004.
  • Panelist, Plenary Session, “Latest Controversies and Complexities and the Role of the Breast Cancer     Advocate,” NBCC Annual Advocacy Training Conference, May 2004.
  • Workshop Presenter, “Clinical Trials: Are We Asking the Right Questions?”  NBCC Annual Advocacy Training Conference, May 2004.
  • Webcast for SusanLoveMD.org with Dr. Joyce O’Shaugnessy, Dr. Susan Love, “Advanced Breast Cancer: Beyond Hormones,” October, 2004.
  • Keynote  speaker, “Searching in the Dark,” Emerging Topics in Breast Cancer and the Environment Research, Conference organized by the National Institute for Environmental Health Sciences (NIEHS), Princeton, NJ, November, 2004.
  • Speaker, “Metastatic Breast Cancer: Quality of Life,” Webchat for SusanLoveMD.com, with panelists Drs. Susan Love, Debu Tripathy, and Hope Rugo. San Antonio Breast Cancer Symposium, December, 2004. 

2003

  • Co-Presenter, “Proteomics, A New Approach to Understanding Breast Cancer,” NBCC Annual Advocacy Training Conference, May 2003
  • Panelist, Plenary Session, The Role of the FDA in the 21st Century: Safety, Science and Speed, NBCC Annual Advocacy Training Conference, May 2003
  • Panelist, UCSF Symposium on Ethical Considerations in Genetics, San Francisco, April, 2003
  • Teleconference with Dr. Eric Winer (Dana Farber) on Advanced Breast Cancer, NABCO and BreastCancer.org, September,  2003
  • Treatment and Outcomes for High-risk and Metastatic Breast Cancer in California: An Inquiry into Disparities and Research Needs, presentation of white paper for the California Breast Cancer Research Program, November 2003
  • Phase III Clinical Trials: Are we answering the important questions?
  • Phase II Clinical Trials: When do we know enough about safety and efficacy
  • Navigating to Knowledge: Keeping Current with Breast Cancer Research, Faculty presentations for Clinical Trials Project LEAD training, December 2003

2001-2002

  • “Challenges and Choices: A Survivor Talks about Life After Breast Cancer”   North Carolina Breast Cancer Coalition, Southwest Oklahoma Breast Cancer Alliance, Tulsa, 2001 
  • Presenter and Consumer/Advocate Panelist, with Eric Winer (Dana Farber), Metastatic Breast Cancer Symposium, Boston, April 2002   Massachusetts Breast Cancer Research Program Annual Meeting
  • Chaired, Institute of Medicine Panel on “Mammography and Beyond,” SHARE: Self-Help for Women with Breast and Ovarian Cancer, NYC, 2002
  • “Reach to Recovery: Advanced Breast Cancer, development and taping of training modules,” American Cancer Society, Atlanta 2001
  • Presentation, Breast Cancer Drug Development workshop  NBCC Annual Advocacy Training Conference, 2002
  • “Can we individualize the treatment of patients with breast cancer based on genomic profiling?”  “New Approaches to Breast Cancer Metastasis” Panelist representing advocacy perspective, Era of Hope, The Department of Defense Breast Cancer Research Program Conference, Orlando, 2002
  • Consumer panelist, Case Presentation on Advanced Breast Cancer, San Antonio Breast Cancer Symposium, San Antonio, December, 2002

 After Breast Cancer: Answers to the Questions You’re Afraid to Ask   2002-2008 presentations:

  • Plenary Address to the World Conference on Breast Cancer, Victoria, BC 2002 
  • Keynote at Madison Breast Cancer Recovery Foundation, Madison, WI 2003
  • Keynote at Hamilton Breast Cancer Program Conference, Hamilton, Ontario, 2003
  • Presentations at Mid-Hudson Breast Cancer Options; Cumberland Valley Breast Cancer Awareness; Breast Cancer Coalition of Rochester; Ithaca Breast Cancer Alliance; Breast Cancer Action, San Francisco; Austin Breast Cancer Coalition; Rhode Island Breast Cancer Coalition, Providence; Living Beyond Breast Cancer, Young Survivors Group, Philadelphia; Young Survival Coalition Annual Conference, Philadelphia;  Willow Breast Cancer Resources in Windsor, Ontario; Alaska Breast Cancer Partners and Providence Hospital, Anchorage, Alaska; Virginia Breast Cancer Foundation.
  • “Living with Advanced Breast Cancer”  1998-2004 Wellness Community, Philadelphia; Mautner Conference on Lesbians and Cancer; Austin Breast Cancer Resource Center; Rochester Breast Cancer Coalition; ACS Nurses Training Day, Utica; SHARE; two World Conferences on Breast Cancer; MAMM Magazine WebCasts 2000, 2001; WebMD WebCasts 2000-2004;  Many radio interview/call-ins.
  • “Report back from the San Antonio Breast Cancer Symposium, Report back from ASCO SHARE: Self-Help for Women with Breast and Ovarian Cancer, New York, 2000, 2001, 2002, 2003, 2006,2007